I have been promising to write stuff about neurodiversity for a long time. There’s so much to write. I even considered creating an entire Medium channel dedicated to the topic. But the irony is, that one notable aspect of my particular flavour of neurospiciness is to start things, get distracted by other things, and neglect the first thing. This is why I have 7 blogs. And I’ve lost count of how many FB pages I run, well….started. So, that’s on hold for now. But I have gathered my thoughts (it’s like herding cats really) enough to put THIS one together.
I write mostly in the middle of the night. Which is to say, in my head. In my bed. Not at a keyboard. Sometimes I remember enough if these perfect essays to write them down the next day, but usually I have moved on! But one thought has been nagging at me for so long, there’s not a chance of me forgetting it. Then yesterday I had a related thought. So, in a way, his blog post wrote itself. But first……some background for those who don’t know me or my family.
We are a neurodiverse family. I think it’s fairly conclusive now that this stuff is usually hereditary (I’ll tell you about the exceptions another time). Add to that, neurodiverse people are frequently attracted to each other (like magnets). So, neurodiverse families are a thing. But it’s only in quite recent times that “mild” neurodiversity has been recognized. Leading to many people self-diagnosing at an advanced age, often after a child gets a proper diagnosis. It’s an aha! moment in the family. And like the joke about Uncle Fred who insists there was none of this autism in his day, as he wears the same shirt every day, can’t have his food touching, and is rude to everyone, when we suddenly see it in others in the lineage a lot of things make sense.
For us, it was a slow process. Our 5th child was diagnosed with autism at the age of 6. We knew he was weird, but everybody in our family is weird, so we just accepted him as he was. The school saw it differently. The letter I got was “Get this child a diagnosis or don’t send him back in September”. Or words to that effect. So we got him a diagnosis, and also a remark in a letter to the school from the pediatric psychologist that in layman’s terms was “DEAL WITH IT”, and carried on. Gradually over the years schools and teacher became more capable of dealing with it, and his education was ultimately a success, with a few hiccups along the way.
My son is now 32, still lives at home, is unable to find work because of his differences, so receives disability benefits from the government, but he’s a treasure. He’s funny, smart, and the kindest person I have ever met. He’s also an expert on his own condition, and a great teacher. So when I am talking to people about autism, I don’t just speak from having him around, I quote him.
We saw in his eldest brother and father quite a few significant traits that he has. These are both men who function well and have successful careers. So we knew, perhaps sooner than many, that autism comes in all shapes and sizes. We also recognized it in my mother-in-law, and, from stories, her father, who was born in the 1880s. He was a polymath. A very successful and respected man, but quite obnoxious, and extremely eccentric. And my mother-in-law once told me “When I was a little girl they thought there was something wrong with me, because I never smiled.” “Wrong” is not the word I would use, but in describing my mother-in-law the word “different” always feels like an understatement. She was extremely weird.
So, yes, it runs in the family.
Then my eldest daughter had two children diagnosed with ADHD. Then my younger daughter had two children diagnosed with ADHD. Coincidence?
ADHD is a distant cousin of autism. They share some traits, are opposite in others, but they both come under the term “Neurodiversity”. The big difference is that there are drugs which treat ADHD. And all 4 grandchildren were medicated and carried on just fine.
And THEN……my younger daughter’s youngest was diagnosed with autism. Not a huge shock, but it was about this time she started to see ADHD in herself. Meanwhile my eldest daughter pondered her own quirks. And studied.
And there was this moment, I’ll tell you exactly what happened…..
We were taking a walk alongside a lake while on vacation together. I remember exactly where we were at the time. She was saying that I have neurodiverse traits. And I laughed. I admitted to being a bit quirky, but happily so. But more to the point I said “I’m no more quirky than everyone else I know!”
And my far too wise for her years daughter said firmly “Mom, you surround yourself with your own kind. You always have. You think of anyone else as boring.”
I think I went quiet because the realization that she was absolutely right blindsided me. But I slowly came to realize over time that I wasn’t the normal one in the family. I was just good at dealing with my own quirks, none of which were difficult anyway, they mostly made me creative. They helped me raise quirky kids, with an open mind. And the ones that were a bit of a nuisance, I’d found ways round over the years. Plus, I had always been accepted exactly as I was by people that mattered, and anyone who didn’t like me? Well, fuck ’em.
I was an only child of a widowed mother. She doted on me and praised my idiosyncrasies. I did later however, become aware that she warned people, in advance of meeting me, that I marched to the beat of my own drum. But she was also an enabler. When I hated tea (imagine that, growing up in England) she told me it was fine to decline so long as I was polite about it. She let me wear whatever I liked and encouraged all my many and varied hobbies. For a weird child at that time, this was not typical. Children were expected to go along with social norms whether they liked it or not. All that was ever asked of me was that I wasn’t rude to people. So I wasn’t. Usually. But she always called me a rebel. I was a punk rocker, by sheer coincidence (!). A rebel. What was my cause?
So, being diagnosed by my daughter, albeit at the tender age of 61, simply gave me an explanation. Sort of. But what sort of neurodiverse am I?
You see, I had adult friends with ADHD, and I had read up on it, and I didn’t see myself there really. And I definitely didn’t seem to be autistic. So, I just settled for neurodiverse, or to be funny, neurospicy, because it’s mild. Ish.
One day I mentioned this to my eldest. I said I had realized I was a little neurodiverse. He looked me straight in the eye and said “Mother, you have rampant ADHD.” I never saw that, because I am not a fidget. And I have never suffered from racing brain. Except, I scratch a lot, and my inner voice never shuts up. Fact is, I’m just used to having a “busy” brain. I get bored so easily that I usually read or crochet while watching a TV show I’m really keen on. But an hour of TV is about my limit. I struggle with movies. In fact, the more we learn about the broad range of ADHD traits as a society, and the more I think about it and analyze myself, the more I see it.
On the other hand, I share quite a few traits with my autistic son. Only in a much more subtle way, but there’s no escaping it. We understand each other and get along as friends. He makes more sense, most of the time, than “normal” people.
It is possible to have autism AND ADHD, and those diagnosed with both struggle to the nth, for obvious reasons. The two conditions fight each other, e.g. you want routine but you can’t seem to keep to it. You need social interaction, but it exhausts you. And so on. It’s a double whammy. But if both sides of it are mild enough, you function. You’re just extra quirky.
What if we take all of these traits, simply call them “Neurodiverse Traits” and just count them? Everybody, EVERYBODY, will have one or two. It’s part of being human. But there would be a threshold number, I don’t know, maybe 25% of the list, where it would become a thing. And at 50% a problem. At 75% you would struggle to cope in society. And those numbers could be way off. Because struggle depends on your particular situation. Understanding neurodiversity is increasing quite rapidly, and I believe there will come a time when the line between ADHD and autism will blur so much they’ll stop differentiating. Because each of them already have sub-types. Remember, if you meet one neurodiverse person, you’ve met one neurodiverse person. Never compare.
Before I launch into the two real reasons for this post (good grief, are we not there yet?) I want to talk about masking. This is where a neurodiverse person actively, deliberately, selectively hides their neurodiverse traits. It is now considered quite dangerous, but for decades it was taught as being the right thing to do. Long before any understanding of neurodiversity, and sadly, even after, we were all taught to “be normal”. Behave in the prescribed manner. Follow the social norms. Don’t talk about your weird interests. Don’t be weird. Why can’t you be like everyone else? What’s wrong with you?
Now, obviously some people simply can’t do this. But those who could, did their best. Girls are usually much better at it than boys. So girls have a much harder time being understood and being diagnosed. Which is why women in their 50s, 60s, 70s are now seeking a diagnosis, and when they get it they feel an immense weight off their minds. A life of anxiety, shame, and self-doubt, and suddenly, it all make sense. It’s a beautiful thing. Men are more likely to deal with it by being angry, or abusing substances. Now that people are seeing they are not alone, self-diagnosing, and being their authentic selves, life is easier for them. It’s saving relationships.
I never hid my quirks. Maybe this is why I never suffered. My attitude was always “This is me, take it or leave it.” Friends were selected from those who were fine with me as is. When my husband and I met I was a little punk rocker in spray-on pink jeans, he took me at face value, and although I know sometimes I make even him squirm (“Mel, shh, don’t cause a scene.”) he’s never tried to change me. Wouldn’t work anyway. When I found it hard to do something, I simply did something else. I’m not good with authority (q.v. Pathological Demand Avoidance, which can also manifest in a mild form) so I became self-employed. Problem solved. I never liked dresses, so I stopped wearing them. What you see is what you get. So long as I am not causing you harm, deal with it.
Now then.
A random group on Facebook this morning asked “Women who never wear make-up, why?”
I was about to reply with my usual “Can’t be bothered”. But I gave myself time to think deeper. And while it’s quite true that I can’t be bothered, there is a bit more to it than that. Once in a blue moon, like if I attend a wedding and I’m wearing posh clothes, I will put a little on. Because I’m already “in costume” and it seems to make sense.
And my final answer was “Why should I? Men don’t.”
There’s a bit of stubbornness in there. If I’m expected to do something, and I don’t agree with the reason, I won’t do it. Mild PDA, you see? The rebel. I got into trouble at a job once for not wearing heels. I was on my feet all day, and I was never good in heels anyway, so I said no. Not happening. The general manager was called in. I said if he wore heels, so would I. It was never mentioned again. I don’t like double standards, and fuck the patriarchy.
I wore make-up as a young woman. But it wasn’t standard. I did it my way and it was punk/Goth, not too extreme actually, but not standard. I was waiting outside the school for my daughter one day and another mother had the nerve to tell me that as a respectable mother I shouldn’t wear make-up like that. I got right in her face and said “Don’t you EVER call me respectable.”
But I lost interest. I once promised to wear make-up when I hit 60, but when the time came I tried, it wasn’t easy, and I didn’t really care for the results. I can’t do eyeliner straight, and that’s the best bit. I am not ruling it out. Maybe when I hit 70…..
The point is I don’t do it because it is “expected”. I mean…by whom? Who says I should? Why?
I have asked a few people who complain about the cost and time it takes why they do it. And their reasons tend to be based on the opinion of others. Well, fuck that.
If you ENJOY make-up, oh my dear, go nuts! You have my absolute blessing, encouragement, and would you like some for Christmas? It’s not just a “you do you” thing. No, I want YOU to be happy. Whoever you are. So if make-up makes YOU happy, girl get that brush going.
But if it doesn’t make you happy, I hope you find the courage to rebel.
Because I think it’s often just a social norm. God, I hate social norms. I really fucking hate social norms.
I was told, many years ago that etiquette (social norms disguised as politeness) was created to help people. So they never had to guess what to do, they could learn it by heart, and then just follow the rules. Simple as that! Particularly true of table manners, but also of greetings, and gift-giving and receiving, and hospitality, and so on. Well, that’s a nice idea. Anything intended to make anyone’s life easier has to be a good thing, doesn’t it?
Except for many, many people it’s unpleasant. Maybe in small ways, like how I find smalltalk boring. And maybe in big ways like the crippling stress of socializing for introverts and the neurodiverse. I’m all for saying please and thank you, don’t get me wrong. Most people can manage that. But being expected to behave in ways opposite to your nature, when you were doing no harm, is just ridiculous. And that’s not taking into account that social norms vary by custom. You don’t have to go halfway round the world to experience it either. You can find differences simply between the country and city. Some social groups hug. Others shake hands. But my son-in-law’s Portuguese family kiss your cheeks three times, and you better be ready and on the right side! I was once chastised by an Italian taxi driver for not making smalltalk before asking for directions. I get it, I’ll get it right next time, but I find it daft.
Ah, and then there’s the ugly side to social norms. In many communities and cultures gossip is a social norm. I despise it, won’t do it, and will call it out on occasion. This prevents me from fitting in in certain circles. Fine. It’s nothing to admire. Then there’s racism and/or xenophobia, and other bigotry. If you find yourself the odd one out in a social setting where jokes are being made about the “other”, you may as well leave, because you’re outnumbered, and anything you say will be ignored anyway. But you are expected to laugh. Expectations like this are considered normal. The victims of the gossip or the jokes are not “us”, they are other. For now at least, this is the social norm.
I’m not buying it. There is good behaviour and there is bad behaviour and they really are universal. If you are not harming others, and in fact your intention is kindness, while looking out for your own welfare, I fail to see how anything is wrong. Civilization runs on being civil, rules are for those with an agenda.
In the end it is, as usual, a game of numbers. The majority get to say what is and isn’t normal, and they also get to say what they do to those who don’t comply. Tolerance is, in my humble opinion, the best option. Tolerance is not a goal. It’s a step towards a goal. Tolerance says “I don’t like this, but I’ll mind my own business.” Tolerance can break down easily under pressure. It’s far from perfect. But it is the best most of us can do and, most importantly, keep up.
The next step is understanding, and that’s the hard one. There are many things I don’t understand. Some, I may never understand. Some, I may have no business trying to understand. Nevertheless, I find life works best when we consider the “why” of what people do. Sometimes it allows us to forgive them, or at least continue the discussion.
I have been told by those much wiser than myself, that there are really no bad people. That all bad behaviour has an explanation, and often this is often a disorder of some kind, even if just from personal trauma. I have noticed that the intolerant see it the other way around. They consider any talk of disorder to be an excuse. The important thing here is that there is a difference between an excuse and an explanation, but many don’t seem to understand that at all. What can I do? Educate.
If you found this piece to be useful in any way, please do let me know. I often feel that I’m writing to nobody but myself, and while that helps me get things out of my brain, it gives me no clue as to whether you are interested in more, or not. I’ll probably write more anyway. It’s what I do.








